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Hypochondria as a legitimate hobby

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  • Thank, Beek! Get some rest, Res.
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    • It wasn't COVID!!

      Thank god.

      YAY! Covid has really made every cold and allergy attack into a terrifying thing. I wonder if we will feel that way well into the future?



      And okay guys, I need any advice y'all can give me about glaucoma. Do any of y'all have it? My eye doc was like, pretty sure you've got glaucoma so I'm sending you to a surgeon/specialist and then I was out the door like, WUT, and the specialist hasn't contacted me to make an appointment yet and the interwebz is TRAUMATIZING me about this diagnosis and also! this means I have to quit my asthma medication* completely so now I am heading into my Peak Asthma Nastiness Season completely unmedicated.


      HALP.




      *looks like the kind of asthma meds I have been on for years is probably what is causing the high eye pressure in the first place, so I guess? I did this to myself?

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      • I don't! But did you also post that you gotta do a follow up mammo? Because that's super common, so don't freak out.

        Also, I don't think glaucoma automatically ends in blindness! I thought it was treatable.
        Itís just really honestly so tiring and emotionally draining to have to get upset over reality constantly.

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        • Because that's super common, so don't freak out.

          I'm not super worried, but maybe a little? because they did the 3D mammogram and an ultrasound and spotted something on both apparently. Guess we'll see!



          Also, I don't think glaucoma automatically ends in blindness! I thought it was treatable.

          Been doing my best to research it myself and you can't cure it but you can slow it down with drops and/or various surgeries*. One category of drops I can't use because of my asthma, so my regular eye doc sent me out the door with a bottle of the second category . . . but I had an immediate allergic reaction to those. And when I called to see if there was an alternative, they said to just wait until I see the specialist. So I'm not using anything right now. I go in for a vision field test next week - i guess to see what damage might have already been caused, maybe? Still haven't heard from the specialist about an appt yet, but it's a holiday so . . .

          My eye test is at 8:50 and my mammogram is at 10:30 on the same day, such fun.


          *terrible terrible horrifying sounding surgeries involving burning holes and implanting shunts etc


          Anyway, I'm way down the rabbit hole on what I am not supposed to do to raise eye pressure. No weight lifting, yoga, deep sea diving, cut back on screen time, no face down massages, no sleeping on my stomach . . . okay, no problem. But!


          Y'ALL THE INTERWEBZ SAID A WOMAN MY AGE WENT BLIND FROM AN ORGASM WHAT THE HELL.



          Last edited by ophy; 11-24-2021, 03:37 PM.

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          • My mom had glaucoma surgery. I know it sounds awful but for her it wasn't painful at all. She does have major problem seeing anything when she gets from a place with light to a darker place and vice versa. It takes her longer than usual for her eyes to adjust. Other than that, her sight is good for a woman her age.

            You guys, I hadn't mentioned my nephew because I wanted to see how it will turn out but he seems to be doing okay finally so... He got covid probably on 26th of October. His first symptoms were on the 28th. He had high fever for two weeks and then pneumonia and got into the hospital ten days ago. Today he is finally in a regular room, not in intensive care but still on oxygen. Not vaccinated because... I don't even know why! When I"d ask him before he"d always say he will get to it eventually. I am so mad at him and so relieved now. He is 22. It's been almost a month and he's still not over covid. Young people feel unbeatable I suppose but it's just so wrong.
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            • It's been almost a month and he's still not over covid

              That is terrifying! I'm so glad for you that he seems to have turned the corner on it.


              My mom had glaucoma surgery. I know it sounds awful but for her it wasn't painful at all.

              Very reassuring, thank you!

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              • Thanks, ophy. Let us know the results of your tests, will you?
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                • Is, is it you who had good results with CBD oil for sleep problems? Can you explain what you did - oil, gummies, lotion, bath bomb? My boy is wanting to try it out and I need to help him research what thing might be good. And I am clueless.

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                  • Thanks, ophy. Let us know the results of your tests, will you?


                    Do have glaucoma . . . booo! Don't have breast cancer . . . yaaaay!



                    Took them 2.5 hours of wedging me into the mammogram machine and then ultrasounds (and I got so dizzy and was in so much pain that I almost passed out and fell down and one of them had prop me up during the imaging) to tell me I had lymph nodes. I already knew I had lymph nodes! But yeah, apparently one of them nodes was kinda swollen and tricked them into thinking it was a tumor. Note to the rest of you, wait 6 wks to 2 months AFTER getting a covid shot or a flu shot before doing a mammogram because the whole node-or-tumor? issue happens a lot. Took me two days in bed to recover, not even kidding.



                    Is, is it you who had good results with CBD oil for sleep problems?

                    I LOVED my cbd oil for sleeping, until the eye doc told me I had to quit it because cbd does raise eye pressure. I have used gummies and about three different cbd brands, but what worked best for me was Joy Organics full spectrum oil.



                    https://joyorganics.com/products/org...cbd-fresh-lime




                    Not cheap, but I was out like a light every night. The downside to full spectrum is that you can test positive on drug tests if you use it . . . not a problem for me, but something to think about. Joy Organics also sells non-full spectrum, though.

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                    • Well, I'm glad that the worst case senario is not true but I'm sorry you still suffer from the boatiness, ophy!

                      It's seems unreal to me that there are drugs that can make you better but you cannot have them. I think here, it would be enough for a hospital doctor to declare that they are the only ones that can help, and you would get them if not for free, at least way cheaper.
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                      • (vanessa! I can't believe I just glossed right over you saying 'YOUR BOY'. So glad that is still going well!!!!!)










                        It's seems unreal to me that there are drugs that can make you better but you cannot have them.

                        Yeah, there's also an asthma med my doc wants me to try which is ALSO $30k per year, and my insurance said sure . . . but we only cover 10%, so good luck with that. Grrrr.

                        The migraine med in question is Nurtec and it's pretty new. You take it every other day as a preventative . . . the free sample pack (worth $1,000) is 8 pills. I took three pills, and for those 6 days was blessedly blessedly free from headaches and head pressure and tinnitus and ear stuffiness and my boatiness reduced down a lot. With no side effects*! That was the kicker for me, because I get side effects to errrrything.


                        * caveat that apparently long term usage might have side effects, that is still being studied.

                        Insurance company said they would reconsider their denial it if I first tried a different drug for a few months (a classic migraine drug that has no real vestibular benefits and lots of nasty side effects) and if I also did Botox injections for a while. Again, botox injections don't seem to have vestibular benefits and are really expensive! and painful! The fun part is that I would have to pay out of pocket for the botox anyway, which makes no damn sense. I don't want to do either of those useless things -- and even if I did, there would be no guarantee they would reverse the denial.

                        My doc says she doesn't think the insurance company has a classification or protocol for vestibular migraine, so they are approaching me as a typical migraine patient instead. It's very frustrating.


                        I'm hoarding my last five pills to use as a rescue med in case the spinny spinny starts again because I hate the spinny spinny so damn much. But yes, I'm Big Damn Mad about this stupid country and our stupid healthcare-or-lack-thereof system!

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                        • Y'all, mr.o and I started to feel very sick very fast today. Like, bad flu sick but it hit us both in a matter of minutes. So far, kids seem okay and he and I are each isolating in different parts of the house. Vaxxed and boosted, obvs, but omicron duncurr ab out that!

                          any advice welcome! From what I understand there's no point in testing for a couple more days with omicron (if that's what it is) if you are vaxxed, but there are no rapid tests to buy right now anyway and the ones I ordered from amazon won't be here until 1/6 or so.

                          mr.o is too sick to drive us to a testing place anyway.

                          worried about my currently unmanaged asthma, y'all. wondering if it's worth raising my eye pressure to go back on the meds while sick. worried about my kids who haven't been boosted yet through no fault of their own.

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                          • I hope everything goes well, o. I don't have any advice, unfortunately since you can't test and probably wouldn't show anything anyway. Drink tea and fluids, I know that helps. It'sprobablyjusttheflu. *hugs*
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                            • Oh, no, ophy, that sucks! Please keep us updated. Everyone seems to be dropping with that shit left and right! Luckily, if it's omicron, most people are having mild cases!

                              I used full spectrum CBD Distillery. https://www.thecbdistillery.com/ A full dropper of it and then reducing a bit to see if I could get away with less (half a dropper full was great). It reallllly worked for me and now I take it kind of as needed.

                              We recently switched to BCBS insurance and my husband has had to argue almost monthly for his ADHD meds that he's been on for YEARS. It's an over the top burden.
                              Itís just really honestly so tiring and emotionally draining to have to get upset over reality constantly.

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                              • Noooooo! I’m so sorry, o. Really hope it’s just a weird cold or a plain ol’ flu! I wouldn’t know what else to do other than to mask up around the kids. Tylenol? Vitamin D? Zinc? Ugh. FUCK COVID.

                                A toddler at my kids’ daycare tested positive at the laaaast minute last week, so we got the babes’ brains poked for a PCR test at a children’s hospital drive-thru in the hopes that they could get results to us in 24 hours. They could not. Christmas Eve was dismal, and I cried in the bathroom in between trying to scrounge up Christmas magic for our three-year-old. But we were so lucky to get negative results on Christmas morning and the kids got to experience new toys and holiday food with both sets of grandparents instead of eating a frozen pizza at our completely underprepared house.

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